We invite you to share in our family's journey. Our oldest Daughter is a pure delight and also happens to have CHARGE Syndrome and has been through numerous medical procedures. She has two little sisters who adore her and bring endless amounts of energy and joy to our family. These are our stories.
10/8/07
CHARGE get together
Our local (Western WA) CHARGE friends got together in Bellingham this past Sunday. It is always so great to see the progress each child is making. I am still blown away by how different and similar all these kiddos are, but for me the best part is connecting with parents who know what it is like to have a child with CHARGE Syndrome, in a world where most people have never even heard of the Syndrome! I loved our get together...thank you Max (and your mommy) for allowing us into your beautiful home and hosting us. I wish I had taken some better pictures...I am sure I will have more to share when my friends post pictures on their web sites. I look forward to reconnecting in the Spring!
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