We invite you to share in our family's journey. Our oldest Daughter is a pure delight and also happens to have CHARGE Syndrome and has been through numerous medical procedures. She has two little sisters who adore her and bring endless amounts of energy and joy to our family. These are our stories.
3/23/10
Maya's trach is back in
Maya had her trach replaced this evening in a very uneventful and fast procedure. We are VERY grateful for the successful surgery and now the trach reality will settle in. At least it all seems familiar...new type of trach...it is cuffed this time, AND she may need some pressure support from CPAP or BiPAP for a bit to help her lung....which is at about 75%. We are happy to be on this side of things and look forward to the process of getting her healthy and home.
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