We had a super day with some friends in Seattle. Both Families have a child who is impacted by CHARGE Syndrome. This came just a few weeks after we hosted a WA state CHARGE gathering at our home, and these two families were unable to attend. Since they just live an hour away, we decided to get together. while Maya, Burke, and Cassidy are definitely individuals who are impacted differently by CHARGE, our families share a lot of commonalities. Each kid is one of 3 children, and each of them is the oldest child in the family, Burke is a big brother to his new twin baby brothers, and Cassidy has a younger sister and a little brother. And of course you know Maya is the oldest of 3 girls. We certainly had fun with our friends. My highlights were holding twin babies, and being pretty amazed at how well Chris and Nate (Burke's parents) manage their three boys...they are certainly one amazing team! My other highlight was watching Cassidy "pose" for the camera. Everytime I pulled my camera out she struck the most beautiful pose, with the most amazing smile. I always love visiting with parents who deal with the same challenges we face raising not just a child with special needs, but children so similar to Maya...we can talk feeding issues, breathing issues, communication concerns, growth challenges, surgeries, visits to Seattle Childrens, and best of all the huge stides our kiddos make despite their challenges. thanks for a great visit you all! Hope to see all the families again in the Fall!
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